TWICKENHAM ROWING CLUB

Twickenham member takes on big challenge in support of others

30th March 2009

Emma Jones (Sox) is running this year’s London Marathon for the Daily Telegraph Brain and Spine Foundation team, which is captained this year by Tim Brabants (Olympic Canoeist). It’s a really tough challenge and for a good cause that is close to her heart. The race takes place on Sunday 26 April.

 

“Hello all this is Emma Jones (more commonly known as Sox). Brain and Spine conditions are a bigger problem in the UK than Heart Disease and Cancer and yet if you walked into an A&E dept in the UK then you have a 5% chance of seeing a Neurosurgeon.  If you live in Kent then your nearest neurosurgeon is in Calais.  Anyone involved in sport should be concerned about Brain & Spine conditions and cures.

 

I am personally putting myself through 26 miles of agony at the London Marathon (it is going to take me about 6 hours and you all know how injury prone I am!) because I have a cousin severely disabled with Cerebal Palsy.  Matthew is 8, he has never walked, never eaten a meal and will never walk.  I would do anything to give him that first step…hence enduring 26 miles of what will be for me…pure pain.  The Brain and Spine Foundation is the number 1 organisation in the UK which researches into the condition and provides a 24 hour helpline manned by qualified Neuro-nurses for sufferers and carers.  Believe me, their support is invaluable when the UK is so massively under-resourced.

 

As sportspeople we should be doing all we can to support Brain and Spine Foundations, we need to support them.

 

So please do a good thing today and earn yourself some good karma and give generously at: www.justgiving.com/gooddeedoftheday

 

Please also pass on to all your friends and family that may have been affected by any of following conditions:

Strokes, tumours, Alzheimers, Dementia, Cerebral Palsy, ADHD, MS, ME, Paralysis it would be great if you could support my endeavour and the sterling work of the organisations.”

 

The Full Range of Neurological Conditions

The Brain and Spine Foundation provide a generic perspective on the impact of neurological conditions.

 

Here is an extensive list of recognised neurological conditions.

 

A

Acoustic Neuroma

Alzheimers

Aneurysm

Antipholipid Syndrome

Arachnoiditis

Arteriovenous malformation (AVM)

Arthritis

Asperger’s Syndrome

Ataxia

Attention Deficiency Disorder (ADD)

Attention Deficit Hyperactivity Disorder (ADHD)

Autism

 

B

Bell’s Palsy

Behcets Disease

Brain Injury

Brain Tumour

 

C

Carpal Tunnel syndrome

Cerebral Palsy

Chronic Fatigue Syndrome (CFS)

Charcot Marie Tooth disease

Cluster headaches

 

D

Dementia

Devic’s Disease

Dyslexia

Dysphasia

Dyspraxia

Dystonia

 

E

Elkbom’s Syndrome

Enciphalitis

Epilepsy

Essential Tremor

 

F

Familial Spastic Paraplegia (FSP)

Fibromyalgia

 

G

Guillain-Barre Syndrome (GBS)

 

H

Headache

Head injury

Hughes Syndrome

Huntington’s Disease

Hydrocephalus

 

L

Landau-Kieffner Syndrome

Leukodystrophy

Lissencephaly

Lyme disease

 

M

Meniere’s  Disease

Meningitis

Migraine

Motor neurone disease

Multiple Sclerosis

Multiple System Atrophy (MSA)

Muscular Dystrophy

Myalgic Enciphalomyecitis (ME)

Myasthemia Gravis

 

N

Narcolepsy

Neurofibromatosis

Neuropathy

Niemann-Pick Disease

 

P

Parkinson’s Disease

Pick Disease

Pituitary Disorder

Post-Polio Syndrome

Prader-Willi Syndrome

Progressive Supranuclear Palsy (PSP)

 

R

Reflex Sympathetic Disorder (RSD)

Restless legs Syndrome (RLS)

Rett Syndrome

 

S

Sarcoidosis

Sjogren’s syndrome

Spina Bifida

Spinal Cord Tumor

Spinal Dyspraphism

Spinal Injury

Spinal Muscular Atrophy (SMA)

Sticky Blood Syndrome

Stroke

Subarachnoid haemorrhage (SAH)

Syringomyelia

 

 

 

Source: www.neural.org.uk

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